Early identification of children with sickle cell disease and related hemoglobinopathies
Increase awareness, knowledge and skill level of Ohio’s health care professionals
Expand community awareness of the disorders
Hemoglobinopathies include sickle cell disease and sickle cell trait. These diseases can vary in the number and severity of symptoms. Some are life-threatening while others show no signs of the condition. Severe cases that are left untreated can cause a shortage of red blood cells, organ damage or other serious complications.
All babies born in Ohio have been tested for sickle cell traits since March of 1990. It is part of over 40 genetic disorders tested for in newborns.
It is important for parents to know if they have the disease or are a carrier. If both parents have the sickle cell trait there is a 25% chance with each pregnancy of having a baby born with sickle cell disease.
Doctors must let parents know if there are abnormal results, so the child is careful with family planning in the future. It is very important for couples to know their hemoglobin type before having children.
Common Complications of Sickle Cell
Pain crises episodes
Acute chest syndrome
Avascular necrosis (AVN)
Leg/ankle ulcers (mostly in adults)
Delayed growth and development
The only cure known for the disease is a bone marrow transplant and is not available to many patients. The process is very expensive and very risky. It requires a matching bone marrow donor, usually a sibling. Most patients are treated their entire lives with drugs to reduce the effects of the disease and to help control the pain.
There are currently experimental cures using gene therapy being tried where no donor is needed.
Thank you, Cynthia L. Moon, for joining us to educate CNO about Sickle Cell Disease and the Ohio Sickle Cell Project at Dayton Children’s Hospital.
New Member Readings and Inductions
Casey Dixon (Guest)
Yesterday was her child’s 8th birthday.
Happy for all the friends they have added through the Centerville Noon Optimist Club.
Debe Dockins announced that 2,965 flags were distributed for Veteran’s Day. Thanks to all the volunteers. A special thanks to the Avenue of Flags committee members, Mike Brubaker, Bob Burkman, and Tom Novak for a very successful year.
Debe Dockins announced that two new committees have chairs, and each needs a co-chair. If you would like to volunteer contact the new chairs. For the Photography Contest committee contact Julie Noeth. For the Visual Arts Contest committee contact Deb Saunders.
Christy Gariety, Adopt-A-Family chair, announced that she is looking for 15 more participants for the holiday program. The deadline is 11/23/2020. Contact Christy if you would like to participate this year. It is easier than ever to get involved; you just purchase gift cards for children in need. If $50 is more than you want to spend, team up with another member to purchase a card together.
Social Media Announcement
Katie Calloway, Social Media chair, updated us about the Social Media Committee. Her co-chair is Diane Arehart. Katie said the Facebook page now has over 1000 followers. The committee posts about fundraisers and donations made by CNO. They tag organizations receiving the donations and tag the organizations of the CNO guest speakers.
How can you help with Social Media? Like the CNO Facebook page. Please also tag the club in your posts.
If you are a committee chair, please reach out to Katie or Diane to get them to place posts for your fundraiser or community event. They are working on having consistent branding of CNO across all social media platforms.
Annual Holiday Party on Zoom
The annual Holiday Party will be virtual this year. It will be Friday, December 11, 2020 at 6:30 PM. Everyone is invited and there is no cost to attend. The Christian D. Larsen Awards for lifetime achievement will be awarded to members of CNO. The ugly holiday sweater contest with prizes for originality will begin at 6:30. At 7 PM will be the Award Presentation. At 7:30 PM, there will be a Holiday Trivia contest.
Vicki Giambrone, CBD Advisors
Nancy Lehren introduced Vicki Giambrone a partner with CBD Advisors. Vicki is passionate about serving the needs of children. She spent nearly 24 years as VP for Strategic Partnerships and Business Development for Dayton Children’s Hospital (DCH).
Some have described Vicki’s work at DCH as legendary. Simply put, she can be described as an advocate and champion of kids.
Giambrone is a former mayor of Beavercreek, Ohio.
Some of the Awards Giambrone has received for her work
Woman of the Year for the Leukemia and Lymphoma Society of Southwestern Ohio
Dayton Business Journal Power 50 (2015)
Top 10 Women (Dayton Daily News) (2000)
Giambrone’s presentation today was titled, “Optimists can make a profound difference for Ohio’s children through advocacy! Bringing about the best for kids.”
A statement Giambrone mentioned several times today was, “Who’s for kids and who’s just kidding?”
Giambrone was disappointed that during the recent election there was very little discussion about advocating for children. She was happy with the previous Ohio governor’s election because both candidates signed promises to support policies for kids.
To be a Champion for kids we need to learn, speak up and act.
How are the 546,000 kids aged 0-5 years faring in Ohio?
46th in the nation in overall health value in the nation
1 in 4 living in poverty
1 in 3 Appalachian children living in poverty
More than 1 in 2 African American babies living in poverty
Early Adversity has Lasting Impacts
One in seven Ohio children have experienced three or more Adverse Childhood Experiences (ACES). This has a lasting impact. It leads to more injuries, mental health issues, HIV and STDs, chronic disease, alcohol and drug abuse, unsafe sex and reduced income opportunities.
Ohio’s Workforce crisis starts with kids not ready for school
Only 41% of kids come to kindergarten ready to learn
Only 44% of Ohio’s workforce has a degree or credential for available jobs
Ohio needs to give all Ohioans an opportunity to succeed by supporting kids in their earliest years
How are kids aged 0-5 faring in Montgomery County?
33.6% live in poverty
61.9% of African American kids live in poverty
34% demonstrate readiness for Kindergarten
19% of African American kids demonstrate readiness for Kindergarten
22% of Hispanic kids demonstrate readiness for Kindergarten
How can you help Bring about the Best for Kids?
Speak up for kids
Become a Citizen Lobbyist and Child Advocate
Be Registered to vote and then vote for candidates who support policies for kids
Know who your legislators are
Be vocal with and contact legislators and other public officials about the issues that matter for kids
Vote for Ohio Kids is a statewide effort started in partnership by Groundwork Ohio and the Ohio Children’s Hospitals Association – dedicated to advocating for policies and investments to improve child health and wellbeing so that we create opportunities for all Ohio children to thrive.
Vote for Ohio kids is driving a powerful policy agenda that puts Ohio kids front and center. We know Ohio children are best positioned for lifelong success if they are healthy, safe, connected, and ready to learn. See slide 17 for further details.
Ohio is about to create their next state budget. When its budget cutting time, they always start with the easiest targets. And kids are the easiest target because they do not vote, which is why kids need advocates.
Giambrone’s favorite quote is from Margaret Mead, “Never doubt that a small group of thoughtful, committed citizens can change the world, indeed, it’s the only thing that ever has.” Giambrone said she is thrilled about what CNO and Optimist International does for kids.
Comments after the presentation
CNO member Christy Gariety, a retired Kindergarten Teacher from Dayton City Schools, had a comment. There are resources in our area but getting access to these services and resources is very difficult for a lot of families. We need to think differently. Giambrone agreed that transportation is a huge issue. Giambrone then said she worries that with kids at home because of COVID-19 instead of school that abuse is still occurring but not being reported.
Giambrone said that Montgomery Count recently donated $2 Million for free internet for the next 3 years. This will assist 2000 families.
Thank you, Vicki Giambrone, for speaking to us today about child advocacy and children’s wellness in Ohio and Montgomery County.
New Member Readings and Inductions
Thanks to Vicki Giambrone for speaking to us today.
Debe wanted to mention that Vicki Giambrone received honorable mention for the 2018 Erma Bombeck writing contest.
CHS Girls Division 1 Cross Country team are 2020 state champions. The team helps CNO with tree delivery each year at the tree lot. ($5)
Highly recommends the book, “Power of the Creed” by James M Rankin.
Happy she was rescued from being locked in the bathroom at flag headquarters.
Roy Barclay and Jerry Stahley did nice work installing a sign behind the Centerville BMV explaining that the 2020 tree lot is cancelled.