November 17, 2020 – Cynthia Moon – About Sickle Cell Disease

Announcements

Katie Calloway, Social Media, announced that on LinkedIn she has created a company page for the Centerville Noon Optimist Club. She invites you to add your volunteer experience to your profile. The CNO logo will then show on your LinkedIn profile page. If you previously linked to CNO, link again to refresh the CNO logo.

Social Events

The annual Holiday Party will be virtual this year. It will be on Friday, December 11, 2020 at 6:30PM. Everyone is invited and there is no cost to attend. Christian D. Larsen Awards for lifetime achievement will be awarded to members of CNO. There is no cost to attend. The ugly holiday sweater contest will begin at 6:30 with prizes for originality. At 7 PM will be the Award Presentation. At 7:30, there will be a Holiday Trivia contest.

Cynthia L. Moon, Sickle Cell Project Director at Dayton Children’s Hospital

Nancy Lehren introduced Cynthia L. Moon, MSE, the Region 2 Sickle Cell Project Director at Dayton Children’s Hospital (DCH). The state of Ohio notifies Moon each time a child in the West Ohio region has an abnormal hemoglobin result after a newborn screening. The primary care physician is notified as well. At this point, the doctor can provide the confirmatory testing and follow-up education or they can refer the family to Dayton Children’s Hospital.

CNO’s Childhood Health and Wellness committee annually hosts a Build-A-Bear for Sickle Cell patients through DCH. Moon thanked CNO for having this fun event each year; the kids love it.

Her presentation is titled, “West Central Ohio Comprehensive Sickle Cell Center/Ohio Newborn Screening Program for Hemoglobinopathies.”

You can view the slide deck here

Check the slide deck for additional details not listed in the article.

In Ohio, about 100 kids a year are born with Sickle Cell Disease (SCD).

Sickle Cell Disease is the most common inherited blood disorder in the U.S. Sickle Cell Disease is a term used to describe a group of disorders that affect the hemoglobin in red blood cells. The abnormal blood cells are shaped like a sickle. It is a life-long condition, characterized by pain and the disease does not have a universal cure. The abnormal cells are jagged, stiff, sticky and they tend to clump together and occlude blood flow. This then causes damage to tissue, blood vessels, organs and bone.

Sickle cell disease is an invisible disease. Many patients look normal but are experiencing severe pain and organ damage. They also deal with stigmas and stereotypes. To understand the pain of the disease, imagine having pieces of broken glass flowing through your body.

In the United States, 100,000 Americans are affected by SCD and it affects millions of people worldwide. Anyone can get SCD, although it is more common in people with heritage from Africa, Asia, Europe, Mediterranean areas (Turkey, Greece, Italy), Middle East and Central and South America.

Ohio’s 88 counties are served by six regional sickle cell projects (ORSCP). Each ORSCP is funded by a grant from the Ohio Department of Health Sickle Cell Services Program.

Moon’s region includes 17 counties. Her counties with the highest concentration of cases are Allen, Clark, Greene, and Montgomery. The headquarters for her region is the Hematology and Oncology Department at Dayton Children’s Hospital.

The Goals of ORSCP

  • Early identification of children with sickle cell disease and related hemoglobinopathies
  • Increase awareness, knowledge and skill level of Ohio’s health care professionals
  • Expand community awareness of the disorders

Hemoglobinopathies include sickle cell disease and sickle cell trait. These diseases can vary in the number and severity of symptoms. Some are life-threatening while others show no signs of the condition. Severe cases that are left untreated can cause a shortage of red blood cells, organ damage or other serious complications.

All babies born in Ohio have been tested for sickle cell traits since March of 1990. It is part of over 40 genetic disorders tested for in newborns.

It is important for parents to know if they have the disease or are a carrier. If both parents have the sickle cell trait there is a 25% chance with each pregnancy of having a baby born with sickle cell disease.

Doctors must let parents know if there are abnormal results, so the child is careful with family planning in the future. It is very important for couples to know their hemoglobin type before having children.

Common Complications of Sickle Cell

  • Pain crises episodes
  • Infection/fever
  • Acute chest syndrome
  • Anemia
  • Gallbladder issues
  • Splenic sequestration
  • Stroke
  • Priapism
  • Avascular necrosis (AVN)
  • Leg/ankle ulcers (mostly in adults)
  • Delayed growth and development
  • Psychosocial issues

The only cure known for the disease is a bone marrow transplant and is not available to many patients. The process is very expensive and very risky. It requires a matching bone marrow donor, usually a sibling. Most patients are treated their entire lives with drugs to reduce the effects of the disease and to help control the pain.

There are currently experimental cures using gene therapy being tried where no donor is needed.

Thank you, Cynthia L. Moon, for joining us to educate CNO about Sickle Cell Disease and the Ohio Sickle Cell Project at Dayton Children’s Hospital.

New Member Readings and Inductions

No readings nor inductions this week.

Happy Bucks

Member Reason
Casey Dixon (Guest)Yesterday was her child’s 8th birthday.
Judy DeMarcoHappy for all the friends they have added through the Centerville Noon Optimist Club.

Membership Anniversaries

Member Month Day Joined # Years
Larry England November 17 11/17/1994 16
Nancy Lehren November 17 11/17/1994 16
Julie Cochran November 19 11/19/2009 11
Beth Duncan November 20 11/20/2016 4
John Kalaman November 20 11/20/2016 4
Jon Fox November 20 11/20/2000 20
Marilyn Becht November 20 11/20/2016 4
Paula Kalaman November 20 11/20/2016 4
Christine Balsan November 21 11/21/2013 7
Dave Klein November 21 11/21/2013 7
Kristina Rainer November 21 11/21/2012 8
Martha Jackson November 21 11/21/2013 7
Bill DeFries November 23 11/23/2004 16

Birthdays

Member Birthday
Russell Hulbert November 19
Maureen Ruff November 20
Brendan Cunningham November 22
Jayne Weikel November 22
Mike Kistler November 23

CNO Donations 2013 through October 2020

Click this link to see a summary of the donations our club has made.

Over the past 53 years, we have donated over $2,000,000 to our youth community. In the past 6 years, we have donated nearly $712,000.

Sergeants at Arms

No Sergeants this week.

Welcome Guests!

Casey Dixon – Guest of Jeff Umbreit – WELCOME Casey!

Zoom Meeting This Week

We had another meeting using Zoom. We will continue our weekly meetings via computer, cell phone or tablet for at least the next several weeks. Please join us and keep inviting guests.

Who can Attend Zoom Meetings?

Any member of any type of Centerville Noon Optimist can attend Zoom meetings. CNO 2.0, St Leonard’s and CNO full members or CNO monthly members can ALL attend.

Guests are also welcome. Please invite guests and introduce them if you like. Just share the Zoom link with them for that week.

COVID-19 UPDATE

In keeping with social distancing requirements – our CNO Meetings have transitioned temporarily to a online format using ZOOM.

Club Member Joe Madden was inspired to rewrite The Optimist Creed – so we give you now – The Corona Creed -with apologies to Christian D. Larson, Author of The Optimist Creed.

November 10, 2020 – Vicki Giambrone – Child Wellness and Advocacy in Ohio

Announcements

Debe Dockins announced that 2,965 flags were distributed for Veteran’s Day. Thanks to all the volunteers. A special thanks to the Avenue of Flags committee members, Mike Brubaker, Bob Burkman, and Tom Novak for a very successful year.

Debe Dockins announced that two new committees have chairs, and each needs a co-chair. If you would like to volunteer contact the new chairs. For the Photography Contest committee contact Julie Noeth. For the Visual Arts Contest committee contact Deb Saunders.

Christy Gariety, Adopt-A-Family chair, announced that she is looking for 15 more participants for the holiday program. The deadline is 11/23/2020. Contact Christy if you would like to participate this year. It is easier than ever to get involved; you just purchase gift cards for children in need. If $50 is more than you want to spend, team up with another member to purchase a card together.

Social Media Announcement

Katie Calloway, Social Media chair, updated us about the Social Media Committee. Her co-chair is Diane Arehart. Katie said the Facebook page now has over 1000 followers. The committee posts about fundraisers and donations made by CNO. They tag organizations receiving the donations and tag the organizations of the CNO guest speakers.

How can you help with Social Media? Like the CNO Facebook page. Please also tag the club in your posts.

If you are a committee chair, please reach out to Katie or Diane to get them to place posts for your fundraiser or community event. They are working on having consistent branding of CNO across all social media platforms.

Annual Holiday Party on Zoom

The annual Holiday Party will be virtual this year. It will be Friday, December 11, 2020 at 6:30 PM. Everyone is invited and there is no cost to attend. The Christian D. Larsen Awards for lifetime achievement will be awarded to members of CNO. The ugly holiday sweater contest with prizes for originality will begin at 6:30. At 7 PM will be the Award Presentation. At 7:30 PM, there will be a Holiday Trivia contest.

Vicki Giambrone, CBD Advisors

Nancy Lehren introduced Vicki Giambrone a partner with CBD Advisors. Vicki is passionate about serving the needs of children. She spent nearly 24 years as VP for Strategic Partnerships and Business Development for Dayton Children’s Hospital (DCH).

Some have described Vicki’s work at DCH as legendary. Simply put, she can be described as an advocate and champion of kids.

Giambrone is a former mayor of Beavercreek, Ohio.

Some of the Awards Giambrone has received for her work

  • Woman of the Year for the Leukemia and Lymphoma Society of Southwestern Ohio
  • Dayton Business Journal Power 50 (2015)
  • Top 10 Women (Dayton Daily News) (2000)

Giambrone’s presentation today was titled, “Optimists can make a profound difference for Ohio’s children through advocacy! Bringing about the best for kids.”

A statement Giambrone mentioned several times today was, “Who’s for kids and who’s just kidding?”

You can view the slide deck here.

Giambrone was disappointed that during the recent election there was very little discussion about advocating for children. She was happy with the previous Ohio governor’s election because both candidates signed promises to support policies for kids.

To be a Champion for kids we need to learn, speak up and act.

How are the 546,000 kids aged 0-5 years faring in Ohio?

  • 46th in the nation in overall health value in the nation
  • 1 in 4 living in poverty
  • 1 in 3 Appalachian children living in poverty
  • More than 1 in 2 African American babies living in poverty

Early Adversity has Lasting Impacts

One in seven Ohio children have experienced three or more Adverse Childhood Experiences (ACES). This has a lasting impact. It leads to more injuries, mental health issues, HIV and STDs, chronic disease, alcohol and drug abuse, unsafe sex and reduced income opportunities.

Ohio’s Workforce crisis starts with kids not ready for school

  • Only 41% of kids come to kindergarten ready to learn
  • Only 44% of Ohio’s workforce has a degree or credential for available jobs
  • Ohio needs to give all Ohioans an opportunity to succeed by supporting kids in their earliest years

How are kids aged 0-5 faring in Montgomery County?

  • 33.6% live in poverty
  • 61.9% of African American kids live in poverty
  • 34% demonstrate readiness for Kindergarten
  • 19% of African American kids demonstrate readiness for Kindergarten
  • 22% of Hispanic kids demonstrate readiness for Kindergarten

How can you help Bring about the Best for Kids?

  • Speak up for kids
  • Become a Citizen Lobbyist and Child Advocate
    • Be Registered to vote and then vote for candidates who support policies for kids
    • Know who your legislators are
    • Be vocal with and contact legislators and other public officials about the issues that matter for kids
    • Write Op-Eds
    • Put information in your newsletters
  • Join Advocacy groups or coalitions

Vote for Ohio Kids

Vote for Ohio Kids is a statewide effort started in partnership by Groundwork Ohio and the Ohio Children’s Hospitals Association – dedicated to advocating for policies and investments to improve child health and wellbeing so that we create opportunities for all Ohio children to thrive.

Vote for Ohio kids is driving a powerful policy agenda that puts Ohio kids front and center. We know Ohio children are best positioned for lifelong success if they are healthy, safe, connected, and ready to learn. See slide 17 for further details.

Ohio is about to create their next state budget. When its budget cutting time, they always start with the easiest targets. And kids are the easiest target because they do not vote, which is why kids need advocates.

Giambrone’s favorite quote is from Margaret Mead, “Never doubt that a small group of thoughtful, committed citizens can change the world, indeed, it’s the only thing that ever has.” Giambrone said she is thrilled about what CNO and Optimist International does for kids.

Comments after the presentation

CNO member Christy Gariety, a retired Kindergarten Teacher from Dayton City Schools, had a comment. There are resources in our area but getting access to these services and resources is very difficult for a lot of families. We need to think differently. Giambrone agreed that transportation is a huge issue. Giambrone then said she worries that with kids at home because of COVID-19 instead of school that abuse is still occurring but not being reported.

Giambrone said that Montgomery Count recently donated $2 Million for free internet for the next 3 years. This will assist 2000 families.

Thank you, Vicki Giambrone, for speaking to us today about child advocacy and children’s wellness in Ohio and Montgomery County.

New Member Readings and Inductions

Np readings nor inductions this week.

Happy Bucks

Member Reason
Debe Dockins Thanks to Vicki Giambrone for speaking to us today.
Debe Dockins Debe wanted to mention that Vicki Giambrone received honorable mention for the 2018 Erma Bombeck writing contest.
Jeff Umbreit CHS Girls Division 1 Cross Country team are 2020 state champions. The team helps CNO with tree delivery each year at the tree lot. ($5)
Jean Pummill Highly recommends the book, “Power of the Creed” by James M Rankin.
Carolyn Taylor Happy she was rescued from being locked in the bathroom at flag headquarters.
Greg Griffin Roy Barclay and Jerry Stahley did nice work installing a sign behind the Centerville BMV explaining that the 2020 tree lot is cancelled.

Membership Anniversaries

Member Month Day Joined
Bob Vogt November 8 11/8/2005
Art Hung November 16 11/16/2001
Tim Clemmer November 16 11/16/2001

Birthdays

Member Birthday
Robin Golden November 4
Judy McFadden November 6
Drew Mckenzie November 6
Charlie Tapp November 6
JoAnne Rau November 7
Laurie Poeppelman November 7
Dan Apolito November 8
Ken Irwin November 9
Dean Heyne November 10
Gary Aiken November 11
Becky Keegan November 12
Kelly George November 12

CNO Donations 2013 through October 2020

Click this link to see a summary of the donations our club has made.

Over the past 53 years, we have donated over $2,000,000 to our youth community. In the past 6 years, we have donated nearly $712,000.

Sergeants at Arms

No Sergeants this week.

Welcome Guests!

Casey Dixon – Guest of Jeff Umbreit – WELCOME Casey!

Zoom Meeting This Week

We had another meeting using Zoom. We will continue our weekly meetings via computer, cell phone or tablet for at least the next several weeks. Please join us and keep inviting guests.

Who can Attend Zoom Meetings?

Any member of any type of Centerville Noon Optimist can attend Zoom meetings. CNO 2.0, St Leonard’s and CNO full members or CNO monthly members can ALL attend.

Guests are also welcome. Please invite guests and introduce them if you like. Just share the Zoom link with them for that week.

COVID-19 UPDATE

In keeping with social distancing requirements – our CNO Meetings have transitioned temporarily to a online format using ZOOM.

Club Member Joe Madden was inspired to rewrite The Optimist Creed – so we give you now – The Corona Creed -with apologies to Christian D. Larson, Author of The Optimist Creed.