The Goals of ORSCP
- Early identification of children with sickle cell disease and related hemoglobinopathies
- Increase awareness, knowledge and skill level of Ohio’s health care professionals
- Expand community awareness of the disorders
Hemoglobinopathies include sickle cell disease and sickle cell trait. These diseases can vary in the number and severity of symptoms. Some are life-threatening while others show no signs of the condition. Severe cases that are left untreated can cause a shortage of red blood cells, organ damage or other serious complications.
All babies born in Ohio have been tested for sickle cell traits since March of 1990. It is part of over 40 genetic disorders tested for in newborns.
It is important for parents to know if they have the disease or are a carrier. If both parents have the sickle cell trait there is a 25% chance with each pregnancy of having a baby born with sickle cell disease.
Doctors must let parents know if there are abnormal results, so the child is careful with family planning in the future. It is very important for couples to know their hemoglobin type before having children.
Common Complications of Sickle Cell
- Pain crises episodes
- Acute chest syndrome
- Gallbladder issues
- Splenic sequestration
- Avascular necrosis (AVN)
- Leg/ankle ulcers (mostly in adults)
- Delayed growth and development
- Psychosocial issues
The only cure known for the disease is a bone marrow transplant and is not available to many patients. The process is very expensive and very risky. It requires a matching bone marrow donor, usually a sibling. Most patients are treated their entire lives with drugs to reduce the effects of the disease and to help control the pain.
There are currently experimental cures using gene therapy being tried where no donor is needed.
Thank you, Cynthia L. Moon, for joining us to educate CNO about Sickle Cell Disease and the Ohio Sickle Cell Project at Dayton Children’s Hospital.
New Member Readings and Inductions
|Casey Dixon (Guest)||Yesterday was her child’s 8th birthday.|
|Judy DeMarco||Happy for all the friends they have added through the Centerville Noon Optimist Club.|
|Russell Hulbert||November 19|
|Maureen Ruff||November 20|
|Brendan Cunningham||November 22|
|Jayne Weikel||November 22|
|Mike Kistler||November 23|
CNO Donations 2013 through October 2020
Over the past 53 years, we have donated over $2,000,000 to our youth community. In the past 6 years, we have donated nearly $712,000.
Sergeants at Arms
No Sergeants this week.
Casey Dixon – Guest of Jeff Umbreit – WELCOME Casey!
Zoom Meeting This Week
We had another meeting using Zoom. We will continue our weekly meetings via computer, cell phone or tablet for at least the next several weeks. Please join us and keep inviting guests.
Who can Attend Zoom Meetings?
Any member of any type of Centerville Noon Optimist can attend Zoom meetings. CNO 2.0, St Leonard’s and CNO full members or CNO monthly members can ALL attend.
Guests are also welcome. Please invite guests and introduce them if you like. Just share the Zoom link with them for that week.
In keeping with social distancing requirements – our CNO Meetings have transitioned temporarily to a online format using ZOOM.
Club Member Joe Madden was inspired to rewrite The Optimist Creed – so we give you now – The Corona Creed -with apologies to Christian D. Larson, Author of The Optimist Creed.