Madelyn Dailey, a Turner’s Syndrome Advocate and 8th grade student at Magsig Middle School

Erin Dickerson’s Prayer

Lord,

In this, the last week in the Christian season of Advent, may we all take time to reflect on Hope, Peace, Joy, and Love.  May we never lose hope that we have the power to make the world a better place, one small act at a time.  May we find peace within our hearts each day knowing we did our very best.  May we find joy, not only in big moments and grand gestures, but also in the everyday little ones.  May we feel Your love surround us and share that same love with all those we meet.  And may we live this, not only during the season of Advent, but in every season of our lives.

Amen.

Announcements

• Gary Hansen gave a huge thank you to the social committee for all the work they did for the Holiday Party last week. Thank you to Debe Dockins, Sarah Umbreit and Sue Jessee and their team and anyone who helped make the evening a great success.
• Debe Dockins announced there will be a social event on 1/16/2022. See Social Events section below.

Dates to Remember                       

• 12/28/2021, there is no lunch meeting at Yankee Trace.
• 1/4/2022, First CNO meeting of 2022. Happy New Year!

Social Event

1/16/2022 at Noon, University of Dayton Flyers vs St Louis Billikens, women’s basketball game. The price is $4.00 per ticket.

Madelyn Dailey – Turner’s Syndrome

Liz Fultz introduced Madelyn Dailey, a 13-year-old 8^th grade student at Magsig Middle School who has Turner’s Syndrome. The goal of her presentation is to raise awareness of and to be an advocate for Turner’s Syndrome.

Joining Madelyn at today’s lunch were her parents, Eric and Amber Dailey. Less than 2% of babies conceived with Turner’s Syndrome survive to birth. Madelyn’s mother says Madelyn is her butterfly miracle daughter.

Madelyn’s presentation is titled, “My Turner Syndrome Journey”. View the slide deck here.

Madelyn said she plays the violin and she loves to play soccer. She has 2 younger sisters, a dog, and 2 cats.

What is Turner’s Syndrome?

Turner syndrome (TS), also known as 45,X, or 45,X0, is a genetic condition in which a female is partially or completely missing an X chromosome.

• TS Affects 1 in 2000 girls and women
• TS is not inherited but is a random event that occurs in the second X chromosome
• Diagnosis of TS happens at an average age of 9 years old, although diagnosis can occur at any age
• A blood test called a karyotype is used to diagnose TS
• The effects of TS vary, but most common characteristics are short stature, infertility, irregular kidney function, cognitive difficulty, hearing loss, thyroid problems, and heart issues, although some have few symptoms

Madelyn’s Early life

• She was born 4 weeks premature, due to HELLP Syndrome
• At birth she weighed 4lbs. 11oz and was 17.5 inches tall
• She spent 2 weeks in the NICU

Madelyn’s TS Diagnosis

• She was diagnosed at 4 years of age
• Her Karyotype is 45x/46xy
• She had a Gonadectomy at age 4 to reduce her elevated chance of cancer

Madelyn’s TS Characteristics

• Short Stature (GH) (Madelyn is taking growth hormone shots 6 days a week; she hopes to make it to 5 feet tall, but if she doesn’t, she said she will buy tall boots)
• Bicuspid aortic valve
• Aortic valvar stenosis
• Hashimoto’s hypothyroidism
• Estrogen Replacement Therapy

Cincinnati Children’s Hospital

• Not all Children’s hospitals have Turner Syndrome Clinics
• Grateful for the Cincinnati TS Clinic, Doctors and Specialists!
• Her doctor is Dr. Iris Gutmark-Little
• Her family participates in the Greater Cincinnati TS Family Group
  • There is an Annual TS Meeting
  • They have TS Family Picnics
  • There hold Cincy Walks for Kids

Donations to Support those with Turner’s Syndrome

To donate to Cincinnati Children’s Hospital that helps local people with TS click here.

You can also donate to. https://www.turnersyndrome.org/ways-to-give

Thank You

Thank you, Madelyn Dailey, for educating us today about Turner’s Syndrome and sharing your experiences with the syndrome.

New Member Readings and Inductions

Name	Sponsor	1st 2nd 3rd Reading or Induction
Ray Daley	Stan Franzaglia	2nd Reading

Welcome Guests!

Guest	Guest Of
Kim Bautz	Mike Bevis
Amber Dailey	Program
Eric Dailey	Program
Madelyn Dailey	Speaker
Jacob Dice	Gail Aiken
Colton Dickerson	Erin Dickerson
Nora Dickerson	Erin Dickerson
Cooper LeMaster	Gail Aiken
Lily McAlpine	Chris McAlpine

Happy Bucks

Member	Reason
Gary Hansen	Will celebrate 47th wedding anniversary with Nancy next week.
Myron Rheaume	Happy to be out for today’s lunch meeting.
Myron Rheaume	Grandaughter Kiera graduated December 10, 2021 after three years from UC. She graduated Magna Cum Laude and was #1 in her class.
Myron Rheaume	Grandson Liam is a captain of the Springboro High School hockey team.
Kelly George	Daughter just finished her first college semester with straight A’s.
Larry Lynde	Congratulations to the 2021 Christian D. Larson award winners: Craig Dring, Chris McAlpine and Don Wildenhaus.
Larry Lynde	Social Committee did a fantastic job with the Holiday Party last week.
Bob Burkman	Will celebrate 59th wedding anniverary with Carol next week.
Joe Madden	Appreciates all the concern for his health issue that happened at the end of the Holiday Party last week.
Joe Madden	Glad the emergency medical team showed up before Gary Smiga used the paddles on him.
Donna Huss	Glad she lived to see the day Larry Lynde was wearing a tie.

Membership Anniversaries

Member	Joined	Years
Scott Langer	December 30, 1997	24

Birthdays

Member	Birthday
Paul Boeckman	December 22
Debe Dockins	December 22
Steve Mock	December 25
Jeff Papanek	December 26
Dave Kay	December 27
Molly Petsch	December 28
Christine Balsan	December 28
Kelly Stone	December 29

CNO Donations – 2013 through November 2021

Click here to see a summary of donations the club has made since 2013

Thank You Notes Received

No Thank You Notes received this week.

Links to PowerPoint and Pictures

A Copy of this Week’s Meeting PowerPoint Slide Deck is here

The photos taken at Today’s Meeting are here.